[acb-diabetics] [Acb-diabetics] dialysis

[Cathy Pyper]

Phyllis,  Thank you for the information.  I don't have any edema either and my numbers aren't as bad as yours are.   I thank you for sharing your information with me.  I wonder why my doctor acted like it was no problem for me to do it at home.  He knows my husband is also totally blind. I have an appointment on the 4th of number so I'll ask him again.  I really want to do it at home.  It has to be healthier.  I see people in taxis after they have had a dialysis session and they are so whipped they can hardly walk.  We have a really smart guide dog and he can see, he just can't talk.  Thanks again for sharing.

Cathy Pyper
First Steps for the Blind Inc.
  ----- Original Message ----- 
  From: Patricia LaFrance-Wolf 
  To: 'Discussion list for diabetics and/or ACB issues.' 
  Sent: Thursday, October 22, 2009 12:30 PM
  Subject: Re: [Acb-diabetics] dialysis


  Well Kathy,

  My creatinine is 3.4 and the kidneys are working at about 13%. I am still not on dialysis because my numbers are still okay and I do not have any edema.  /so, I don't think the docs can exactly give yu a numer as eveeryone's body work differently.  I know people who had the same creatinine level and glr level as mine and yet they had to on dialysis.

  I don't know about a totally blind person being able to do dialysis by themselves at home .  I never heard of that.  My doc even said that my partially sighte husband would probably have difficulty do it as certain things you have to check on are very visual.



  -----Original Message-----
  From: acb-diabetics-bounces at acb.org [mailto:acb-diabetics-bounces at acb.org] On Behalf Of Cathy Pyper
  Sent: Thursday, October 22, 2009 9:51 AM
  To: acb-diabetics at acb.org
  Subject: [Acb-diabetics] dialysis



  Hi Everyone,



  I was wondering if anyone knew what the magic number is before you go on to dialysis and does anyone do it at home.  They have assured me that this is possible, even when no sighted person is  available.  I'm certainly hoping so.  I have heard a lot of different numbers and the doctor seems disinclined to give me an exact number.  I have heard it is a creatin of 3 and a GFR of 10.  Do either of these numbers seem right to you.  I'd like to go into my next appointment with some facts so he has to let me know  Probably a good time to leave the hubby at home.  What do you all think?



  Cathy Pyper in Kansas City

  First Steps for the blind

  To join the First Steps email discussion group click below 
  www.firststepsfortheblind.org



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