[acb-diabetics] Update on my transplant and new studyshowsbetter control for type 1

Tue Jul 5 21:59:17 EDT 2011

Oh, yes, I did try there and they refused me. As did City of Hope.
The dialysis is going well and I feel much better since getting used to it.
Yes, hope to see you there also.  Glad you recovered from that strange
episode.  That is a new one on me!

-----Original Message-----
From: acb-diabetics-bounces at acb.org [mailto:acb-diabetics-bounces at acb.org]
On Behalf Of Sally Maguire
Sent: Monday, July 04, 2011 4:23 PM
To: Discussion list for diabetics and/or ACB issues
Subject: Re: [acb-diabetics] Update on my transplant and new
studyshowsbetter control for type 1

I think you tried at UCSF and they said NO.
We were both disappointed at the time.  It is always  worth checking the new
protocols.  I was turned down by UCSF many times .  They accepted me at the
University of Minnesota and it just turned out to be the same protocol as
UCSF.
They put the cells in my liver.

I did have a serious problem the beginning of the year.
Have you heard of 
Rhabdomyolysis?  I was in the hospital twice.  the muscle cells burst open
and release an enzyme into your system that is toxic, or at least damaging
to the kidneys.

They don't know what caused it.  

Pat, how are you doing with  dialysis?  I know it can be very hard.

I hope to see you at convention.

Sally

----- Original Message ----- 
From: "Patricia LaFrance-Wolf" <plawolf at earthlink.net>
To: "'Discussion list for diabetics and/or ACB issues'"
<acb-diabetics at acb.org>
Sent: Monday, July 04, 2011 8:33 AM
Subject: Re: [acb-diabetics] Update on my transplant and new study
showsbetter control for type 1

> Hello Sally,
> What wonderful news about your islet transplant!  Where did they put the
> islet cells and who did it?  I know what you mean about feeling guilty .
I
> do that too when eating the "wrong" thing. I wonder if they would even
> consider me for a transplant like that after my more than 66 years of
> diabetes.  I hope to see you at the convention. 
> 
> -----Original Message-----
> From: acb-diabetics-bounces at acb.org [mailto:acb-diabetics-bounces at acb.org]
> On Behalf Of Sally Maguire
> Sent: Sunday, July 03, 2011 8:21 PM
> To: Discussion list for diabetics and/or ACB issues
> Subject: Re: [acb-diabetics] Update on my transplant and new study
> showsbetter control for type 1
> 
> Hi Veronica and all,
> 
> I hope this new insulin works fror you.  I had so much troubletrying to
> control the Type 1 diabetes.  I had it for 52 years and now, 2 years ago,
I
> had an islet cell transplant.  
> All has been going well and I can hardly beleive the changes!  I have
eaten
> things this past month I never dreamed of!  I never knew such foods
existed!
> My doctors were very happy to hear that I had been sampling these sweet
> foods.  How strange!  I was so accustomed to being "bad" for eating
sweets!
> Now they are all happy!  Life is very strange.  Blood sugars seem to stay
in
> the normal range.  Blood sugars were getting low on the tandem bike rides.
> Now I find I just need to eat more protein.  I had always been afraid to
eat
> much protein because of harm to the kidneys.
> 
> So, life is good and I hope to meet some of you at the ACB Convention in
> Reno.
> 
> Take care,
> Sally
> 
> ----- Original Message ----- 
> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> To: "Discussion list for diabetics and/or ACB issues"
> <acb-diabetics at acb.org>
> Sent: Tuesday, June 28, 2011 2:54 PM
> Subject: Re: [acb-diabetics] new study shows better control for type 1
> 
> 
>> Yes, Apidra is a fast-acting insulin, supposed to start working 
>> sooner than the usual humalog regular does. It's most useful for 
>> those who run high an hour after meals. I just started using it 
>> yesterday and can already see that I'll be cutting back somewhere. 
>> I'm in the process of figuring out whether that's meal bolus or basal 
>> rates. Also, some people claim that Apidra is better for those with 
>> allergy problems. Since I do have a slight allergy to insulin, I 
>> thought this would be worth a try. So we'll see.
>> 
>> Veronica
>> We Woof You A Merry Christmas! Diabetes Melodious! And more!
>> Music CDs that will impact and entertain you forever!
>> http://www.laurelcreekmusic.com
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> 877-607-6407
>> 
>> _______________________________________________
>> acb-diabetics mailing list
>> acb-diabetics at acb.org
>> http://www.acb.org/mailman/listinfo/acb-diabetics
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