[blindlgbtpride] Reply to Dorene's Question

[jaynewy4 at aol.com]

Hi Dorene:

I'll re-post your questions below for those who might have missed them.  Guess I don't bother saying what I have as it's sort of rare.  I have choroidal neovascularization with Fuch's spots, and attempts to halt the disease gave me pseudo-exfoliation glaucoma, which used to be found only among glass blowers.  I also have several other eye diseases and problems.    

I don't consider the loss of sight either a blessing or a curse.  The way I look at things, we all get something sooner or later and deal with it.  Like Albert, I do miss driving and lots of other things like visual cues on people's faces and movies.  It is impossible so far for me to write books anymore because words and sentences had shapes for me that they no longer have.  I could never write on the computer alone, but had to print out each page afterward.   

The most useful thing I had to learn was patience and to do one thing at a time.  I was the type A person who was always doing three things at once.  Now I just put one foot in front of the other and am happy to do so.

Having a wonderful, supportive life partner has been the best part, and we are closer than ever.

Karla



Hi Karla

Thank you so much for posting.

Do you mind me asking the cause of your blindness?

(Mine is a whole bunch of things: detached retinas, glaucoma, a bad 
reaction to a drug. And this from subpar baseline.)

Did your blindness change anything about your relationship to the queer 
community?

What was most useful for you as part of the rehabilitation process?

You said it takes you twice as long to do everything. Also it sounds 
like you have changed how you do your work? What do you miss most? Is 
there anything you consider a gift?

Thank you for whatever thoguths you want to offer.

Dorene C

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