The following organizations have information available, and conduct research. This list is not intended as an endorsement or a complete listing of all such organizations. For a list of companies that sell items such as large button phones, talking clocks, or computers with speech or large print output or other items which are helpful to persons who are visually impaired, please see our other resource lists.
American Academy of Ophthalmology
P.O. Box 7424
San Francisco, CA 94120-7424
(415) 561-8500
Fax: (415) 561-8533
American Academy of Ophthalmology
This is a very informative website, which includes the ability to search for an
opthalmologist. They are unable to answer individual questions about
medical problems or conditions.
Association for Macular Diseases
210 E. 64th Street
8th Floor
New York, NY 10021
(212) 605-3719
Association for Macular Diseases, Inc.
A nationwide volunteer support group for individuals and their families
which supports research on macular diseases.
Council of Citizens with Low Vision, International (CCLVI)
Pat Beattie
906 North Chambliss Street
Alexandria, VA 22312
(800) 733-2258
Council of Citizens with Low Vision, International (CCLVI)
Has information on technology and services for individuals with low
vision, advocates for the visually impaired, and publishes CCLVI News.
The Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Toll Free: (888) 394-3937
TDD: (800) 683-5551
Local: (410) 568-0150
Local TDD: (410) 363-7139
Email:
Send E-mail
The Foundation Fighting Blindness
This organization provides information on Macular Degeneration, Retinitis Pigmentosa,
Usher Syndrome and Retinal Degenerative Diseases.
Glaucoma Research Foundation
200 Pine Street, Suite 200
San Francisco, CA 94104
toll-free (800) 826-6693
(415) 986-3162
Fax: (415) 986-3763
E-mail:
Send E-mail
Glaucoma Research Foundation
This website has a wealth of timely information, that you can read online,
or have mailed to your home.
Macular Degeneration International
6700 N. Oracle Rd., Suite 505
Tucson, AZ 85704
800-393-7634
E-mail:
Send E-mail
Macular Degeneration International
Has information on juvenile or age-related forms of macular
degeneration. Encourages research and provides educational programs to help
people with macular degeneration and their families develop coping skills.
The Macular Degeneration Partnership
8733 Beverly Blvd., #201
Los Angeles, CA 90048
Macular Degeneration Partnership: Macular Degeneration Help Center
A coalition of patients, families and leaders in the areas of vision and
aging, they have a newsletter and useful resources on their website.
The Macular Degeneration Center,
The Wilmer Eye Institute,
Maumenee 207
Johns Hopkins Hospital
600 N. Wolfe Street
Baltimore, MD 21287
(410) 614-6208
Fax: (410) 614-7083
E-mail:
Send E-mail
Wilmer Eye Institute Macular Degeneration Center
The Wilmer Institute is committed to helping patients with age-related macular degeneration (AMD)
and other macular degenerative diseases, through laboratory
and clinical research and by improving the lifestyle of patients who are currently afflicted with
these diseases. This has led to the organization of the
Macular Degeneration Center at the Wilmer Institute which provides a multidisciplinary approach
in which scientists and clinicians with many different
types of expertise, work together toward the common goal of developing new treatments for macular
degenerations. In addition to helping patients with AMD
in the future by developing new treatments, it is the goal of the Center to provide support
right now through their newsletter, support groups, and patient
oriented meetings.
Medical Breakthroughs -- Medical News and Health Information.
Medical Breakthroughs -- Medical News and Health Information.
This website provides medical news on research, reports, and information about diseases.
National Eye Institute
2020 Vision Place
Bethesda, MD 20892-3655
(301) 496-5248
E-mail:
NEI Website Manager
National Eye Institute of the National Institutes of Health
The National Eye Institute's Office of Communication, Health Education, and Public Liaison
responds directly to requests for information on eye diseases
and vision research. This office cannot diagnose diseases, offer specific treatment
recommendations, or provide physician referrals.
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone Number: (203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax Number: (203)798-2291
E-mail:
Send E-mail
NORD - National Organization for Rare Disorders, Inc.
NORD maintains three searchable databases and an alphabetical index of disease names.
Reports are written in understandable language and can be printed from this website.
Articles cover topics that are not currently included in NORD's Rare
Disease Database and will be sent through the mail.
Abstracts of disease reports, and information about support organizations, are available free on
this website.
Prevent Blindness America
500 E. Remington Road
Schaumburg, IL 60173
(800) 331-2020
FAX: (847) 843-8458
Prevent Blindness America
Provides informational brochures on eye conditions, conducts public and
professional education programs on prevention of blindness and maintains the
Fight for Sight Research Center.
Research to Prevent Blindness
645 Madison Avenue, 21st. fl.
New York, NY 10022-1010
(800) 621-0026
(212) 752-4333
FAX: (212) 688-6231
E-mail:
Send E-mail
rpbusa.org - Research to Prevent Blindness
Provides informational brochures on eye conditions, makes
annual grants to medical institutions, provides information on eye
research and advocates for eye research.
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